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Joined 1 year ago
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Cake day: June 7th, 2023

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  • I am a caregiver for a person with rare b-cell lymphoma (chronic illness, treated with a biologic drug rather than chemo) and I’ve noticed 90% of people don’t understand what chronic cancer means. People can’t really comprehend someone being better than on their deathbed but much worse than their “normal” health and energy level, and that state will never end. I think popular culture portrays cancer as either “about to die” or “in remission”, rather than showing portrayals of the weird in-between state many patients find themselves dealing with.





  • I’ve observed how these streaming services engage in borderline elder abuse. They make it extremely easy to sign up, and then to cancel, they require clicking through five different settings pages with tiny buttons and dark patterns. They obscure what each charge is on billing statements, and they are constantly increasing price, merging with each other, which creates confusion. I’ve had to help elder family and friends get out of subscriptions so many times, and each time, I essentially have to audit what they’re paying for. I think the Feds should mandate that every website has a giant red “Cancel subscription” button in the corner. The FTC is working on something like that, but it is unclear what it will look like in the final version.